Another appointment

As U probably read,,,I have been walking independantly for about 15 steps at a time...(mami has this on video) and today we went to see a therapist my friend Nicolas Massera went to see and helped him with his walking and gate,,,,, so in order to do so,,,, I didn't go to school in the afternoon.. and there we went all the way to FootPrints to see Leigh Anne Stone..... all the way to 240 Duncan Mills in Toronto,,, cool place.. she put some weights on my ankles and they are suppossed to slow me down (Uhpppmm nice try),,,,,but I did walk a more erect.

We are supposed to see her back again by the 19th of November and by then she will have some more work for me to do,,,,, all these work, because mami wants me walking to Papa negro en Mama when we g down in December..... that means I have to work realllllllly hard to get this done, but it's doable.

Now all the things are geared to get paper work ready, Mami sent my SSAHand BCCL applications for 2008,,,, to see what can be done,,,, so she did that today and now she must continue working on the seat arrangments for our trips.

In a nut shell

It was a busy weekend,,, mami had Daddy's golf buddies over for dinner, while I hang out with my big brother Ryan...... things weren't the best this weekend, Patricia got her car taken away from her as she got a BIG speeding ticket,,, so Daddy had to show her that she must slow down....

Other than that,,, we did OK,,, lots of food, cakes and decoration..... the Fall is definately over and Mami is just getting in the spirit of X-mas with decor and all,, right from now.. specially when we are leaving for the DR  and our Caribbean cruise on the 18th of December,,, so if any get together must be done by the weekend of December 15th....

 

Halloween

The terror night is finally here.... please go in my picture link,,, so u can see all the nice things we did,,,,, I even laid down in the leafs with my big "sista" Patricia  while mami filled up the spider legs with leafs!!!!! I am funny,,,, don't u think?

As for my day,,, I would like to say,,,,, IT ROCKS ,,,, I went to IBI,, big party there....and all my buddies were dressed up... mami came and got me with Patricia and took me home to change my outfit and put make up on me.. (green face and all),,,,then my bus driver came and brought me a treat.... I must trick her now!!!

So,,,,, off we went to School,, and as usual,,,pics and pics,,, at the school yard... then MY FIRST SCHOOL DANCE.,,,, and after... to the Vera Davis Centre,,, to visit all those Grand mas and pas,,,,it was fun

So after this long exhausting day.. I will have my lunch,,, have a nice nap and CHARGE to go trick or treating tonight,,,But mami doesn't know what to do for my night custume,,,, it will be a bit cold,,, so I must wear something warm,,,,,Oh well,,,, she will figure it soon enough.

As it turned out,, I wore my Super Girl costume,, but we went tricking at the end of the court for a few houses and then came home to give the candy away,,, What a wonderful nigth,,,,now to wait for the next Halloween, by then, God allows I will be fully walking,, and then maybe I can be a princess with flashing light shoes!!

Check the montages at 

See Halloween 2007 online.

See Halloween celebrations online.

 

Today Mami decided to clean up the shed and put away all the summer stuff,,, so this is a sign that Summer is really gone,,, even when today temperatures were up again at 20 C.

Today was a rush rush day,,, came from IBI to go to school as every day,, but when I came back from school, no nap for me,,,, quick lunch as we had to attend the Kerry's place meeting and at the meeting we got the sadddddddeeeess news ever,,, Cory, Alexa and the whole team is no longer employed by Kerry's place,,,, now Kerry's Place will hire new people on their own....... boy Am I ever going to miss them.....

Mami will post some pics of the people who got me walking in 6 months,,,,,,I owe them so much.

Today was my appoinment with Dr. Chu,,,, but we had to cancel that in order to attend Kerry's Place,,,, probably will see Dr. Chu some time in December.

Thera-togs

Today is the first day I am wearing my new thera-togs,,, mami took a video of me walking my first steps with it,,,,it suppossed to help my little ataxia,,,, mami thinks is more of me trying to get my balance than it is ataxia.

Will see how that goes.

Also I was supposed to see Dr. Yim today, but since Mami never gave me the new medication (Lamictal) she cancelled the appoitment and I continue taking 10 mg twice a day of Clobazam,,,..and we keep on praying that it continues to work.

Ryan's B-day

Big shot OUT to my big brother Ryan, he is turning 16 today,,,, Daddy and Mami are going to give him a nice surprise with hus buddies,,, but I am not going   in any case,,,, HAPPY B-DAY "DOUBLE R 16".... with all my love from ur little sista!!!!!

Patricia is coming home early today so Daddy and Mami can go out for dinner with the boys ( Saw and Chris) to the Mandarin.

Check out the pics of the halloween decoration mami made today while the crazy weather was so great hitting temperatures of 26 C for a record breaking in Ontario in October,,,, uhmmm don't I wish this was our weather for the winter!!!!

Wonderland Delight
Nobody can believe the fantastic weather we been having lately,,, today was 22 C and we took advantage of that and off we went to Canada's Wonderland,,,, and I must urge you to check my pictures,,, I was in the rollercoaster with Daddy while mami took the most amazing shoots,,,,,so check them out!!!!!

IBI IEP at Kerry's Place

Big news of the week,,,, today Mami and Daddy went to Kerry's Place for me IEP,,, lots of people there.... lovely Alexa was there, with Christine and doctors and consultans and they told us that the comunication plan the will use with me is SIGNS,,,, they will tech me signs for drink, food and busy beads,,,, which by the way,,,, here comes a big brag,,,,, I PLAYED ON MY OWN for 40 minutes or about with the beads,,,,never my Mami would have imagine ME doing that,,,, and all thanks to IBI.....I must pad myself in the back,,, too bad I can reach!!!!!

Dr. Molly Malone Study

Another appointment today,,,, I mentioned before that Mami is trying to get me on a study for a drug called Deprenyl,,,, so today we went to see Dr. Malone and Wendy Roberts at Surry's Place,,, they observed me, but no medication yet..... they want me to come back in the Spring.... to see how things have improved with my attention hopefully by then I will be able to get in the study.

Good thing about this, I was able to get prescription for the L-Carnitine that Mami gives me every morning with the folic acid combo,,, so that was good.

Today was a crazy day,,, Patricia brought us down and had to come back to get us as the appointment was for 2:30 so we went back to Daddy's office after doing a little grocery shopping.... mami fed me while daddy tried to get his computer working so mami can book our trip to the DR for X-mas and March break and the better part of that is that we ARE GOING ON A CRUISE of the Caribbean Islands,, so stay tune for the X-mas report... it is going to be AWSOME!!!

 So after hanging out with Daddy, he took us back to the appoitment, he stayed for a bit but had to go to a cocktail-mingle thing,, so Mami and I took advantage and went back to the Eaton Centre,,,, ohhh so much fun shopping and eating JUNK food

My first hair cut at the salon

As we prepare for picture day,,,, mami is taking me to get my hair cut at the salon today,,, so make sure to check my new pictures,,,, with the NEW ME!!!!!

Mami tried to change the appoitment for Monday,,, but we don't have time to waste,, if I don't go then,, I would need to wait another 2 months,, so she will continue having data collected even after the appoitment on Monday and fax it later.